Worrier/Warrior

When faced with infertility, it's fret or fight.

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Location: United States

Find the most current posts at worrierwarrior at wordpress dot com

Friday, June 30, 2006

Test results back

The biopsy and pap smear came back negative for pre-cancerous cells, thank goodness. But, because things are never what they seem in the nether regions of Worrierland, it turns out my pap suggested I may have some inflammation. I’m going to go in bright and early Monday morning to get a culture done and then it’s antibiotics if I’ve got an infection.

I am relieved to hear the test results and the possible infection has me re-thinking the symptoms I’ve associated with pending POF. I want to give it some more thought before blogging about it.

Tuesday, June 27, 2006

And now, more waiting

Today was the sonohistogram and biopsy. And just for fun, a pap smear was thrown in because, you know, when you have an audience of four (RE, RE fellow aka Dr. No Face, med student, Nurse Smiley) for cooter show you might as well make it extra interesting. The RE was the Dr. we met with last August for our infertility consult. At that appointment, I found him to be dismissive, patronizing and arrogant so I wasn’t looking forward to seeing him again. Today, he seemed warmer and gentler. Don’t know which is the real him, so he will be Dr. Schizo for now.

The sonohistogram showed no abnormalities in the uterus as expected since my HSG in October showed the uterus looked ok but Dr. Schizo thought he saw some debris in there. Eh, sorry, but you know Doc, I hate to litter, so when there’s no trash can around… He said this was probably due to the saline being injected in there and stirring things up. He said that it would get cleared out by my next period. The ultrasound still showed the weird spot on my cervix. Dr. Schizo thought it could be glandular in nature, like some extra glandular (innocuous) mass I was born with. But they took a biopsy of it anyway just to be sure it wasn’t precancerous. Why they never saw the cervical weirdness the multiple times they’ve wanded me before, I don’t know. And Dr. Schizo also said he’d never seen anything like it before. Umm, how can you be sure it’s innocuous then?! But, again, I have nothing tangible to consult Dr. Google with and therefore nothing to seed my fears with.


So I will just wait to hear about the biopsy results and go on like I’m not the walking I-have-never-heard/seen-something-like-that-before* freak that I am.

If every thing comes back ok, then the plan will probably be to try the Clomid/IUI once my next period starts. The only problem is that I am expecting my next period to be about a week before my annual meeting with my committee members. The timing will be such that we could be doing or leading up to the IUI around the time of my committee meeting if I am again lucky enough not to have any day 3 cysts. I’m not sure I want all that pressure, especially since I really want this to be my pre-defense meeting (i.e. my committee members tell me I should wrap up my graduate work in the next few months and graduate). My head tells me the smart thing to do is to postpone the cycle until after my committee meeting. My heart says you’ve waited long enough and you still have no answers as to if your eggs are going to respond at all so just go for the gold. I don’t know what I’m going to do. It’s going to be a difficult decision.

*This is a comment I have heard a lot of the last two years. When my miscarriage consisted of being bone dry for the whole day, then gushing blood starting at 9pm and ending at 10pm for two days (really, I could have synchronized the watches of everyone on the West Coast by when the blood gushing started and when it stopped). When my hcg levels took almost two months to drop to below 100, then plateaued at around 70 for two weeks. And when I tell doctors about my early ovulation.


Monday, June 19, 2006

Boys in the freezer

Mr. Warrior was successful again this morning producing a sample and the Andrologist didn’t hunt him down with any bad news as he was leaving, so if we ever get to a point where we have eggs (either mine or a donor’s) to try to fertilize, we have some sperm to do it with (assuming all the boys are ok).

I’m still processing Friday’s Dr.’s visit. Still feeling weepy, scared about the possibilities and frustrated at my body.

Today, a co-worker commented that I didn’t seem to be all there and asked if I was ok. It felt nice that she reached out to me and I was able to talk about the latest development without bursting into tears.

A good friend of mine came to visit over the weekend and that was a nice distraction. She’s a knitter, too and it was fun showing her the blanket I’m finishing for my cousin’s baby due in August.

Now, I just have to find a few more distractions to get me through to next Tuesday. I don’t know how long it will take for biopsy results to come back, but maybe the sonohistogram can shed some light on things.

Friday, June 16, 2006

2996

Thanks, Sarah for getting the word out:

Which step am I on now? (Updated)

It should be no surprise to me anymore that we will hear news that comes out of nowhere when I go see the people who wear the white coats. I have learned to expect bad news but I have yet to learn to anticipate news that leaves even the doctors at a loss. And I should have learned by now. It has happened more times than not.

I had to wait nearly 45 minutes before being called in even though I made sure I got the first appointment of the day and was the first person in my appointment time (they book 4 per slot). I finally got to meet Dr. No Face. Can’t tell you how much fun it is to meet a doctor for the first time when the only thing between you and him is a flimsy, white sheet.

We only made it as far as the cervix before he saw something in my cervix that looked unusual. On the u/s there was a distinct area that looked different from the rest of the cervix. Initially he said that it didn’t look like it was anything to be concerned with but he took some pictures and then said that he would like to give this some thought to see if there should be any reason not to start the Clomid. I told him about the radiologist who commented that my cervix looked irregular like it was red or inflamed during my HSG last year.

He also measured the fibroid that I already knew I had. He explained and showed me that it was outside the uterus on the right side. From his measurements, I think it has gotten bigger since the last time they measured in August ’05 from 1cm to 3cm. He didn’t seem to be as concerned about the fibroid as he was about the cervix irregularity. Finally, we got to the ovaries and both sides were free of cysts.

Dr. No Face gave me a prescription for Clomid (100mg per day), but told me to hold off until he calls me again later today to talk to me. We talked about the possibility that he may refer me to a gynecologist at his clinic (my previous pap smears and annual exams were done at student health as required by insurance). I assume that means he may decide the cervix irregularity may be disturbing enough that it warrants a closer look. I asked him about the irregularity and what he thought of it off the top of his head and basically, he just didn’t know what to make of it or even call it.

I don’t know how I feel about today’s news. I just feel weepy and want to cry. But, I’m being stubborn and I’m unwilling to give into it. I’m glad I have no cysts, today. But, I don’t know yet how serious the cervix irregularity is. Unfortunately, neither does Dr. No Face which means I don’t even know what, if anything, I can google. I expect he’ll call me in a few hours after he gets through all his morning appointments. I hope I don’t have to wait much longer than that to get some direction of where we’ll be going with this.

Updated to add: Dr. No Face has decided we should not go through with this Clomid cycle. He still doesn’t have any possible prognosis (or is unwilling to say at this point) about the weirdness in my cervix. My new next step is to do a sonohystogram on the 27th plus, most likely, a biopsy. He wants to make sure it isn’t anything serious in case I get pregnant on Clomid and then, as he puts it, it’ll be 9 months before we can do anything. Hahaha! Wait until he treats me a while longer. Perhaps he will finally understand the discombobulation (is that a real word?) my body is capable of. I doubt he’ll be so optimistic then.

Is it the worrier inside me or is going for a biopsy Dr. No Face’s way of saying there is a chance it could be cancer without actually saying the words?

Thursday, June 15, 2006

Step 2: check

Period arrived midday yesterday so I called the RE office and have a baseline u/s scheduled for early Friday morning. Now making a mental list of things to ask, should I pass the u/s check:

What are the possible side effects of Clomid?

When does monitoring start and does it entail bloodwork?

If I normally ovulate early (earliest, day 7, latest day 11, average day 9-10) does that affect when they will start monitoring? Will Clomid tend to speed up follicle development?

What things do they want to see while being monitored? What are the things that might cause this cycle to be cancelled?

Questions for myself: How much googling do I want to do beforehand? How much do I want to obsess (read instill fear and expectations) about the next steps?

As this cycle is moving forward, one thing I’m finding is that it’s easy to say I’m going to take it one step at a time and not think beyond that, but in practice it’s difficult. Step 3 is to pass the baseline u/s, but if I do, then the next step after that is to start taking Clomid. Practically, it’s not possible to pause, let Step 3 sink in then start thinking about step 4. This is all going to happen within a short time frame in the Dr.’s office which means I have to think several steps ahead if I want to take advantage of the time I have in there. And, that’s where I get into trouble because really, this whole process, if everything goes smoothly, is a continuum where steps mesh and overlap with other steps. Also, there is almost no way to think about these steps without considering what to expect if things go right. If something goes wrong, easy. We stop, we cry a little and then we re-evaluate what this means for using my eggs to try to get pregnant. But, if the next step goes well, then I can expect that we will do Clomid to induce follicle development and if that goes well, then I can expect we will trigger to induce ovulation and if that goes well…well, you see where we’re headed, right?

So, I guess the big question is how many steps can I prepare myself for without driving myself back to the emotional rollercoaster that was my life when we were trying to get pregnant on our own. That’s a ride I want to avoid getting on again.

Wednesday, June 14, 2006

Half a step forward

The good news: Mr. Warrior got in a sample this morning. My period is still a no show, so he went ahead and made another appointment to try to freeze away a backup for the backup. Mr. Warrior will try again on Monday.


The bad news: The Andrologist hunted him down in the parking lot and told him there was a problem. The lid of the container was half way open and most of the sample leaked onto the lid. The Andrologist didn’t think he would be able to salvage enough of it to freeze. Mr. Warrior will try again on Monday.

The semi-good news: After his success this morning in producing a sample, Mr. Warrior feels more confident about Monday, so that’s a good thing. Confidence certainly doesn’t hurt in these situations. I’m starting to feel the greed, too, and am hoping (yikes, how did hope sneak in here?) we might even have a fresh sample to use on IUI day. Ok, now I’m really getting waaaaay ahead of myself. This is where you all come over and slap me and tell me to snap out of it.

Monday, June 12, 2006

Left foot, Right foot, Left foot, Right foot

My plan to try to keep the fear at bay for the Clomid test cycle is to keep focus only on the next step and don’t give much thought to the things and possibilities beyond that. Surprisingly, this is going pretty well so far. I guess I have finally progressed to that part of living with infertility where you just try not to have expectations anymore.

Mr. Worrier has an appointment for Wednesday to bring in a sample to have it frozen. It was going to be too much pressure for him to try to produce a fresh sample, so we’re hoping we can have something frozen away if we make it as far as the IUI. Since we might not need to use it for at least another week, there is a chance if this Wednesday doesn’t work out, he can set up another appointment to try again. He has been out of sorts these last couple of days and I suspect it’s because he is getting anxious about having to produce a sample. He feels a lot of pressure and I told him first of all, we may not even need it so if he can’t, it may not be an issue anyway. Secondly, I would go through the Clomid anyway just to see how I respond. It will be a valuable cycle in knowing what my response is alone. So try to relax and not think about it.

I know, as soon as I said it, I realized how unhelpful I was. At least the Andrologist was considerate. When Mr. Worrier expressed his worry about being able to produce a sample by a certain time, he gave Mr. Worrier his cell phone number so that Mr. Worrier could call him personally to cancel.

I’m feeling less scared today about the upcoming cycle and what we will find. I’m feeling very neutral, in fact. It’s a welcome change from the abundance of emotional days I had in May.

Wednesday, June 07, 2006

Trying to live scared

A couple of people left comments to my This is Only a Test post. I have wanted to thank them since the comments were left, but found myself unable to. Not that I don’t appreciate the sentiments, I do. But it’s been hard to let myself think about the recent news too much. I’m afraid I will feed hope and hope will grow and I’ll start dreaming and planning the next year based on what if. I have been down that road too many times these last two years. I was deeply afraid that even acknowledging people’s good wishes would start me on that road again. It would mean admitting to myself that maybe the something I have wanted so much might just be attainable and that would be enough to start a hope avalanche I would be powerless to survive. Yes, I know this sounds all oblique and abstract. But really, that’s the crux of it. As long as this all stays somewhat abstract then I can keep the hope tucked away and at bay.

Life, the universe and everything, however, seem to have other plans.

Last night as I was drifting off to sleep, I found myself thinking about how my life would be impacted the rest of this year should the unthinkable happen. What things I might have to do differently, how I would handle things. I felt a little scared that I was letting myself go there and wondered if I was starting to nurture hope.

Two years ago, in the aftermath of my miscarriage, I had a vivid nightmare. I was at work and a coworker announced she was pregnant. In my dream and in those hazy moments afterwards upon waking, I felt an immense ache. Like a thousand stab wounds plus the weight of a thousand mastodons upon my chest. The pain and weight of it all left me breathless and unable to cry.

This morning, the same coworker that I dreamt about told me there was some news she wanted to tell me. I knew what was coming and felt my emotions disengage. As she was talking, I assessed if I needed to keep the conversation short so I can bolt as soon as it was over or if I could feed my need to know how far along she was and other torturous details. I was able to (nicely, I think) congratulate her and talk to her a bit. After the conversation was over, it was difficult to concentrate. For a few hours, all I could do was think about how quickly they had gotten pregnant (married first week of January, now 12 weeks along, must have happened on their first or second try) and the fact that she is married to my boss, so I would have to at least have another conversation about this when I congratulated him. I felt worn out and on the verge of a breakdown. I wondered if I was going to be able to get through the day or whether I should just give into the unfairness of it all and go home. I wondered when I would ever learn that hope would always lead to despair and berated myself for being weak last night and letting hope in. I knew for sure at that point the Clomid cycle I would start this month would be a dismal failure. Either I would get no response or the IUI would fail. It dawned on me that whether it was my eggs or donor eggs or adoption, I may never become a mother. I seriously considered, for the first time, living without children. And I realized, that these last few months I have had quite long periods of happiness and contentment even amidst the struggles I have had dealing with friends and families getting pregnant and having babies. That I do not hate the life I have now, even though it is a life without children. It is difficult and it is hard and I still desparately want children, but I can see that it is possible to live without them and still find some happiness. I will always be around people who will get pregnant easily and end up with a baby 40 weeks later. I realized how exhausted I am to have to feel so miserable and defeated each time I hear other people’s happy pregnancy/baby news and I am tired of feeling that way. Miscarriage and infertility have taken enough from me. They have changed me enough. I don’t want it to have that kind of control over me anymore. There are too many things in life I can’t control to let the things I can control have free reign over me. I can’t control the things that happen to me, but I can control how I respond. I don’t want to respond anymore with fear to pregnancy news or to news that I may be able to get pregnant with my own eggs.

I know that I will continue to react to news of pregnancies and babies with tears and heartbreak. I can accept that and embrace it, even. I have already learned to let myself grieve when I hear these things and learned to give myself permission to feel hateful without berating myself. Now, I want to work on my response after I have let myself react. I want to be able to face the truth of the situation instead of hiding away like a half-dead animal unable to live or die.

So, Carrie P and SusanG, thank you for your good wishes to my post. I hope, yes hope, it is a door to more good news, but if it’s only a window I can gaze at for a little while then I will accept that, too. But, I have to tell you I am scared that this Clomid cycle will tell me something good and I am scared that this Clomid cycle will tell me something bad. I am scared that I won’t get as far as an IUI and scared that if I do, I will ride the hope rollercoaster of doom only to find a negative at the end of the ride or another anembryonic pregnancy. I am scared, but I don’t want to live in fear.

Monday, June 05, 2006

More on Grandpa

One of the good things that came out of our whirlwind trips is that I got to hear more stories about my grandfather. How much of it is exaggerated is hard to know. People rarely speak ill of the dead, you know? But, exaggerated or not, I’d like to share some of the things I learned about the type of person my grandfather was because, embellished or not, they are based on truth. And, as an immigrant who came to the US in his 80’s I know there were far fewer people at his funeral than would have been had he died in the place where he had lived for decades and made many friends, where family of his generation were close by, where his medical colleagues could have paid tribute to him. I also want to share some of these stories because these later years found his health and mental abilities declining and with it, my memories of him and the person he was. In these last years, I had forgotten about the more vibrant and active grandfather I knew when I was younger. And, I suppose like most grandchildren, I never stopped to think that at some point, my grandfather was just a person living life and trying to be a productive member of society. And that my grandpa was more than just my grandfather and may have affected more lives than just those of his family.

~~~~~~~~~~~~

Grandpa was a doctor and apparently was incredibly dedicated and concerned for other people. I remember one of my grandma’s complaints about him was that he was too generous to others and often overlooked the fact that his generosity meant there was too little money for his family. Grandpa’s habit of loaning people money without expecting people to pay it back had always given me the impression that he was someone who was overly nice and, as a result, allowed people to take advantage of him. Since most of my memories of him were of a kind and gentle man, I always thought of him as having a passive nature and so, in some ways, not necessarily a “strong” man. But, this was only one aspect of the person he was. As a doctor of a mid-sized village in China, he came into contact with people of all levels of life. Some could pay for medical services, some could not. But, for Grandpa it did not matter. He treated people regardless of their ability to pay and never turned away patients who needed his help. My grandma told me that whether it was in the middle of the day or middle of the night, if he was home and got called upon for his services, he would hop on his bicycle, or in later years, flag down a taxi, and go to where he was needed. The nature of the illness also did not deter him from doing his job. My mom told me about how he was very proud of the fact that he was the only doctor within several surrounding villages willing to treat people during a cholera outbreak in the1930’s/1940’s.

The most intriguing story I heard about my grandpa concerned his parents. I grew up knowing Grandpa was raised by his uncle and aunt, an uncle and aunt whom he loved dearly and always referred to as “uncle” and “aunt.” The family story is that Grandpa’s father died before Grandpa was born and he was given to his father’s brother to raise because his mom was not able to support him. I asked my grandma for more on this story when I saw her before the funeral. She told me that Grandpa’s birthmother was so distraught over the death of his father that she entered a convent soon after giving my grandpa to his uncle. When I asked if this uncle and aunt ever had other children, she told me that they were unable to conceive. It’s clear to me now that Grandpa was adopted. And the story that was told about Grandpa’s birthparents and being raised by his paternal uncle was one to make his family story culturally acceptable to those around them. If he was related paternally to the parents who raised him, then he is “true” family (versus if he was related through his mother and given to his mother’s brother). The convenience of the “death” of his birthfather before Grandpa’s birth and subsequent “disappearance” of his birthmother to the nunnery is, well, just that, convenient. And who could question, openly anyway, the generosity of an uncle and aunt willingly to take in a nephew to raise as their own? And what a stroke of luck, too, being unable to have biological children themselves. Who knows. Maybe no one questioned it because this kind of story was “code” for adoption in those days.

For me, knowing these things about my grandfather helps me understand how he would have agreed to give my mom away to his sister-in-law to raise. I had assumed it was my grandmother who initiated the conversation between the two of them. But given my grandfather’s birth story, I can see how it could have been a mutual decision between a wife who loved her sister and a husband with a penchant for helping people, who had experienced the benefit of being loved and raised by people who were not his birthparents. It also makes me feel proud to know that my family was built, in part, from adoption and at the same time proud to know the roots of who I am.

When I was asked to give a short eulogy at my grandfather’s funeral, I was very nervous. Though I loved him, I realized I couldn’t really speak to what kind of person he was. Mr. Warrior encouraged me to look inside and just speak the truth. My truth was that I was lucky to be the first grandchild. And like many first grandchildren, I got a lot of the attention from my grandparents. I was even more lucky to have been taken care of by my grandparents after I was born when my parents went back to work and would drop me off at their house for the day. My parents, uncles and grandmother all talk about how my grandfather would carry me and walk around the neighborhood every day after work to show me off. So, even though I don’t have many memories of this time, I have fond feelings of my grandparent’s house. When I was five, my parents and I immigrated to the US. We saw my mother’s parents rarely in those years before they immigrated and by the time they had, I was away at college, then working, then in grad school. In these last few weeks, I learned more about the kind of person my grandfather was. How hard working he was, the 40 plus years he spent as a doctor, how kind and caring. In these last few weeks, I realized that I can see some of those characteristics not only in myself but also my family members. I hope I can continue to live with compassion for others as he did, so I can continue the influence my grandfather had on my family and others.

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